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Scottish Dyspraxion

 

 


Article in The Herald 25.09.08

 

Hi there! Welcome to Scottish Dyspraxion. Here we explore Adult Dyspraxia and its related issues but also provide links to sites providing information on and assistance for people affected by other NeuroDiverse issues. 

 

Dyspraxia is often masked & people an often be surprised when, having appeared quite "normal" to them, ethere are tasks we just can't perform. In this way, Dyspraxia resembles Dyslexia: it can take a while to be "found out", and it is absolutely nothing to be ashamed of... Like a Dyslexic who has never "learned " to write, a Dyspraxic knows only too well the frustrating feeling of not having progressed since childhood in some areas of their life. Dyspraxics with acute noise aversion may extend this lack of progress further - this facet of their make-up hasn't "matured" since infancy.

 

One of the main aims of this site, along with providing an information resource for all Scottish adults with Dyspraxia,  is to provide an online forum for DANDA members in Scotland and - by way of uniting via the website and connecting with other national NeuroDiverse organisations - making changes through NeuroDiverse people in Scotland supporting each other.

 

About Dyspraxia

Dyspraxia is not an illness or disease from which recovery is possible. Rather, it is a neurologically based disorder which has been described as something one gets "around", not "over".  Dyspraxia  - from the Greek “dys” (difficulty) and” praxis” (acting or doing) is an impairment or an immaturity of the organisation of movement. This includes gross motor movement  (activities such as such as balancing and posture) and fine movement skills (writing, drawing and many household tasks such as using a can opener).   People with Dypsraxia generally do not establish hand dominance, and struggle with holding pens, pencils, and other utensils.  It is because of these things that writing and drawing can potentially cause them physical discomfort as well as resulting in poor handwriting. To improve your fine motor skills it is best to consult an occupational therapist. Someone with the condition of Dyspraxia has the problem of being "impaired" when it comes to completing a proper action; however, a Dyspraxic does not appear to be any different physically. Developmental Dyspraxia, in its most simplistic definition, can be explained as an impairment of the interpretation of movements due to underdeveloped neurons. This results in messages not fully coming across to the body. Thus, what you think in your mind and how you apply the idea does not coordinate, and the message that you are trying to convey is not always understood. Dyspraxia is a condition that you can be born with - Developmental Dyspraxia - or can manifest itself through Oral/Verbal Dyspraxia; but, Dyspraxia can also occur due to traumatic head injury.

Dyspraxia is also known as Developmental Co-ordination Disorder. A kinesiologist might refer to it as "neurodisorganisation." A person with dyspraxia may talk continuously without apparently listening to or making eye contact with the other person. Dyspraxics tend to show the symptoms of Attention Defecit Disorder Conversely they might talk slowly with a great deal of repetition. They may also have trouble with pronounciation. The visual difficulties associated with have problems with organisation, memory, sequencing, concentration, sitting still for long periods of time and time management. The flipside of having attention difficulties is an ability to hyper-focus on certain tasks and to show Dyspraxia may result in problems with reading and absorbing information in written form. Auditory problems also show themselves in inability to filter noise and to remember verbal instructions. In common with people with Dyslexia, Dyspraxic people tend to show great persistance in achieving personal goals. Dyspraxia can also manifest itself in heightened sensitivities to sound, light, temperature, touch or certain fabrics.  

 

NeuroDiversity is a broad spectrum – but it’s estimated that 2 per cent of the population is severely affected by symptoms of Dyspraxia. Perhaps lacking the profile of other NeuroDiverse conditions such as Dyspraxia is sometimes described as “the hidden disability”. Fortunately, its existence is becoming less hidden and the condition is officially recognised – the emphasis tends to be on helping children with dyspraxia and their families but groups such as DANDA  (Developmental Adult Neuro-Diversity Association)  and others, many of which we link to on this site, continue to raise awareness of Adult Dyspraxia. The Disability Discrimination Act defines a person as having “a physical or mental impairment which has severe long term adverse effect on a person’s ability to carry out normal day to day activities.” The abilities mentioned include symptoms of Dyspraxia – which affect day-to-day activities – such as manual dexterity and impairments of mind, memory and ability to concentrate. Written confirmation has been given by the Prime Minister’s Office to the Dyspraxia Adult Support Group that if a person with Dyspraxia complies with the above definition of a disabled person, they are covered by the Act. The Government recognises Dyspraxia as a valid medical disorder, as defined by the World Health Organisation’s International Classification of Disease. Unfortunately though, many NeuroDiverse adult adults, are not aware of the condition, let alone that they have it. Awareness amongst medical professionals in relation to adults is also low. As a result of having to deal with conditions they might not even realise have a name NeuroDiverse adults tend to feeldifferent” but aren’t sure why. 

 

As motorcompetence is significantly related to social acceptance, Dyspraxic children & adolescents are often found in the margins of their peer groups, feel socially awkward & unable to muster the “patter” their friends engage in & tending to be the last chosen for the football or netball team. As children & throughout our subsequent lives, we can find we are the target of criticism & ridicule which may become more subtle as we get older but can reoccur when we try to participate in group activities. For child, adolescent & adult, the result of this avoidance of participation is unhappiness and feelings of being isolated and excluded from the Neuro-Typical world. As Max Davidson's excellent April 2008 article in The Telegraph, Clumsy But Clever puts it: "Many dyspraxics grow up anxious and lack social skills. If you cannot trust yourself to perform simple physical tasks, you are bound to diffident". 

Lack of practical skills would have made us unsuitable for National Service and even if we became famous we’d probably be inappropriate as contenders for I’m A Celebrity, Get Me Out Of Here, Big Brother or any other task-based show. To continue the TV theme, we have many strengths and special abilities, but do not possess what our society sees as the Krypton Factor...

 

Positive Aspects Of Dyspraxia

A NeuroDiverse condition can often carry positive aspects: lateral thinking, the tendency to be fully absorbed and preoccupied with tasks that catch their interest. Many of life’s innovators have demonstrated their NeuroDiversity through lateral thinking and achieving by persistency and imagination what others might not even dream of attempting.

 

Perhaps paradoxically to the limitations we can experience in short term memory and following instructions, many of us have good auditory and verbal skills with above-average ability to learn languages, compose music and write creatively. This could be described as paradoxical or contradictory because as Dyspraxics we are often unable to recall a freshly-heard sequence of sounds Dyspraxics have problems with logisitical thinking and thus do not follow any organized pattern of speech. This means that "small chat" is irrelevant, there are pragmatic tendencies and interruptions are prevelant.  This aspect of Dyspraxia makes it difficult to understand what is happening around you. Again, however, through repeated actions a Dyspraxic can learn to enhance these skills. Some people with Dyspraxia have trouble putting words in the correct order and may pronounce words incorrectly and occasionally produce spoonerisms when we speak.

Also, for example, our lack of natural lack of time management  can be turned around and used constructively. By looking at these issues in-depth we have the chance to learn to become better time managers than those to whom such things come naturally but who don’t analyse their time management. By being aware of our need to organise we have the chance to utilise our time to our best advantage.

 

The Gift Of Dyspraxia

Opinions on whether Dyspraxia is a blight or a blessing are divided. This quote from Geoff Brookes in his book on Dyspraxia (Continuum, 2007) eloquently states (from the perspective of a parent) how the condition can shape the lives of those it touches:

"There are those who speak of the “gift” of dyspraxia. As the father of a dyspraxic son I am not sure I can agree with this. If it is a gift then it is that jumper with the orange diagonal stripes that you never wanted. I have had to watch my son wade through a deep river while others strive confidently across the bridge just a little way upstream. It seems so unfair".

 

Checklist

Not everyone who is Dyspraxic has all these symptoms but saying “yes” to most of these questions – listed in no particular order – may indicate you’re “one of us”. We must emphasize that many of these symptoms are common to several constellations of the NeuroDivgerse universe and wouldn't want to attach a shorthand label  of Dyspraxia without specific assessment or diagnosis. Remember, Dyspraxia often co-exists with other NeuroDiverse conditions.

1.Do you have co-ordination difficulties? Do you tend to bump into things & trip over?

2.Are you clumsy & awkward of movement? Do you often spill & drop things?

3. Do you find it hard to judge heights & distances?

4. Do you often mix up left & right & find it hard to give directions and, especially, to remember or act on directions you’re given?

5.Did you dread P.E. at school and were always the last to be picked for a team? Do you still find it hard to emulate dance and aerobic steps others pick up easily?

6.Do you find learning to drive difficult or have avoided it altogether?

7.Do you find DIY difficult? Do you have problems with fastening zips, putting on make-up, tying ties etc.?

8. Have teachers or supervisors described you as careless &/or lazy despite your best efforts to keep up?

9. Is your handwriting poor?

10. Do you find proof-reading & checking your work difficult & have problems with spelling and/or organisation? Do you generally operate in a muddled fashion?

11. Are you constantly distracted by background conversations and noises and often lose the thread of conversations?

12. Do you find certain fabrics uncomfortable & find tight fitting clothes very uncomfortable?

13. Do you tend to ”gag” at the dentist’s?

14. Do you lack stamina & tire easily?

15. Are you extra sensitive to noise, touch, light & taste – perhaps being especially ticklish or unable to stand loud , sharp noises?

16. Do you keep forgetting & losing things &/or missing appointments?

17. Do you find it hard to wink, whistle, cycle, swim or skate?

An inevitable rejoinder to a checklist such as the one above is “Surely everybody shows some of the characteristics” but with Dyspraxia these symptoms tend to come in a cluster – they are not the exception to an otherwise NeuroTypical brain, they tend to rule our lives and can be more extreme than just, for instance, not liking loud bangs or being occasionally a bit forgetful. It can be tempting, but not necessarily accurate,  to assign every NeuroDiverse symptom under the umbrella of Dyspraxia.

 

 

Dyspraxia is a word that isn't recognised by spellcheckers on computers. We hope one day this won't be the case.  Word is getting round, & we aim to help people like us & those who know us, work with us & employ us.  Perhaps you're visiting here because you've just heard about the condition.  Perhaps you’re visiting this site because you’re wondering whether somebody you know might have Dyspraxia. It can be difficult to be diagnosed with Dyspraxia - we touch on this topic in the Our Stories section and are keen to hear from people in Scotland who have been or are looking to diagnosed.  We aim to provide as much useful information here as we can. Please realise you are not alone. We recognise that it comes as quite a relief for some people to be diagnosed while others may find that the label stigmatises them.   We are also aware that many adult Dyspraxics are not aware of the condition, let alone that they have it. It is regrettably the case that the level of awareness amongst the medical profession in relation to adults is low. This is particularly unfortunate since, as with many NeuroDiverse people, having to deal with their conditions can lead to some Dyspraxics experiencing mental health problems including anxiety, depression &, perhaps most commonly, chronically low self-esteem. A significant number end up with drug/alcohol abuse, which may also mask their condition. The less well-off a family is, the less their Dyspraxic child is likely to be diagnosed, and the more likely it is that as an adult they'll become involved in crime and substance abuse.  Dyspraxic inmates are liable to be bullied by other prisoners. We talk quite a bit on this website about how bullies can take advantage of the "different", vulnerable Dyspraxic child. As Victoria Biggs points out in her book Caged In Chaos (see Further Reading), sometimes bullies themselves are Dyspraxic: having no other outlet for their frustrations, their behaviour becomes destructive. Whether destructive to oneself or others (or destructive to both),  it's understandable how frustration can lead to intensely negative feelings about a world that seems to move at a different pace to yourself & doesn't seem to understand the way you are. We certainly don't condone or seek to excuse anti-social behaviour but motor competence, adabptability and an ability to mutitask is undoubtedly linked to  social acceptance which means that those of us who lack motor competence can find it hard to be accepted by our peers. We are marginalised because we're clumsy, unsure of ourselves, "different". We become figures of ridicule & tend to withdraw, perhaps occasionally lashing out at others or turning on ourselves, impatient and frustrated with our inability to accomplish tasks other people perform without a second thought.

 

The Hidden Disability

 

When a baby is born it carries a number of primitive reflexes. In the first year or so of life the NeuroTypical brain matures and the reflexes modify themselves. Dyspraxics retain responses which in NeuroTypicals would have disappeared during the first year or so of life. Known as Organic Brain Dysfunction, this typically includes balance and co-ordination problems. It can also leave one with a baby-like, animal-like extra sensitivity to various stimuli such as the sounds of fireworks, popping balloons etc. referred to in the above checklist.

It can also be hard filtering out background noise to concentrate on specific aural information. Likewise, having poor eye muscle co-ordination results in a lack of ability to ignore movement on the edge of the visual field. Perhaps this is why people speaking directly to Dyspraxics often feel that he Dyspraxic person isn’t fully “there” and is somehow distracted. Both aurally and visually, a Dyspraxic person is indeed subject to more distractions putting additional stressful strain on the central nervous system than a NeuroTypical.

It’s not just a lack of possessing the Krypton Factor. Dyspraxics are constantly reminded when watching reality that they are bereft of the practical skills necessary to survive as a castaway. Since the earliest “stick-backed plastic” days of Blue Peter, Dyspraxic children and adolescents in the UK have been disenfranchised through lack of co-ordination from making, baking and taking part in activities other children and adolescents could easily accomplish. The Generation Game, too, placed great store on co-ordinational competence. The laughs came hard when a contestant couldn’t pass muster.

When trying on clothes in a high street shop, we find it hard to remember where we took the garments, how they were arranged on the hanger and don’t have the co-ordination necessary to replace them as we found them. One of the problems caused by Dyspraxia’s low profile is that our inability can be misinterpreted as carelessness, lack of respect or arrogance. Most Dyspraxics would love to avoid leaving a trail of strewn clothes, messy personal effects and botched attempts at performing practical tasks behind them.

At school Dyspraxics - generally male rather than female by a ratio of three to one  - tend to stand out as un-co-ordinated and awkward as they enter their teens. In earlier years it’s difficult to measure the  progress of possibly Dyspraxic children against normal maturity in children -  the cerebellum being naturally less developed in young adults. As in adulthood, Dyspraxia tends to be a hidden handicap. Children with Dyspraxia often appear to be no different from their peers, until new skills are tried or known ones taken out of context, when difficulties may become apparent. In many affected children, Dyspraxia occurs with or as part of other neurological conditions so that defining common symptoms may be confusing.  As the child grows older and  begins to attempt to participate in sports and sports activities, differences become apparent. It’s now seventy years since the term Congenital Maladroitness was coined to describe “clumsy child syndrome”.  Anecdotal evidence suggest that usually one sport a Dyspraxic child or adolescent tend to show aptitude for is table tennis. Likewise bowling, martial arts, Tai Chi and yoga, all of which can improve co-ordination. Being able to relate to your peers is a very important part of growing up, but many Dyspraxics become singled out from their peers because they lack the coordination, dexterity and perception to participate in sports and become be stuck on the sidelines. Out of school where co-ordination difficulties are not so obvious, one can find oneself more figuratively sidelined but it is SO hard to make people understand. Convincing people one lacks simple motor skills is always hard until problems arise opening or closing blinds, participating in a leisure activity roller skating, or for the ligyrophobic dyspraxic, becoming embarrassingly startled when a balloon pops. Aspects of the condition appear on a daily basis but because parents, friends, lovers, bosses and colleagues often don’t fully understand what it’s like to be Dyspraxic, you can face resentment from them. A situation that is often taken personally by those around the is lack of short term memory. As a young child they will forget papers, pens, and books. It will later manifest itself into social situations because a Dyspraxic will have to repeat everything in their mind in order to understand it. They might not be confident at carrying out instructions they have just been given, worried that they don’t have the co-ordination to perform the task or be unsure of the sequence of instructions they've been give or plainly forget a simple message. This is often taken to be a sign of laziness, ignorance or a lack of consideration. It is none of these. Neither is a lack of reciprocity in returning favours such as meals being cooked for them, lifts being given to them by friends and colleagues who drive or DIY, etc. Not being able to or not feeling confident about repaying kindnesses in kind can be very frustrating for Dyspraxics.

It might be worthwhile to unravel the symptoms of Dyspraxia into two rough groups which could be referred to as  Primary & Secondary symptoms.  I’d categorise Primary Dyspraxic symptoms as inability to perform certain tasks as a direct result of lack of fine motor co-ordination: skating; (for some) bike riding
Secondary Dyspraxia: things you possess enough physical  co-ordination to tackle but your lack of concentration and your learning difficulties won’t let you accomplish. Here I’m thinking about  topics such as cooking – where the mind can wander letting things burn or boil over & performing tasks in a sequence and/or simultaneously can be difficult; office admin tasks; operating a till.
Activities such as driving, operating Venetian blinds  or playing a musical instrument may involve elements of both.

Here are some observable characteristics we adult Dyspraxics can exhibit a work, at home &, in social situations  (again, not all may be immediately apparent):

 

Obsessional characteristics

Co-ordination, balance & posture difficulties – affecting home maintenance, learning to drive.

Perhaps we get made fun of through spilling drinks, bumping into things etc

Lack of manual dexterity

Losing files, untidy desk. Unexpectedly poor appraisals in the workplace. Difficulties in filtering out background noise in order to concentrate fully on work

Inability to keep still, often leaving in our seats

Untidy & rumpled personal presentation

Poor handwriting

Low self-esteem

Being bullied at school & in the workplace

Emotional problems, ADHD & psychiatric illness

Unrealistic expectations

Difficulty remembering instructions, directions etc

Inability to learn from written instructions

Avoidance & reluctance to perform tasks which require sustained mental effort

Organisational difficulties – manifesting themselves in home management and workplace situations

Inability to complete tasks quickly & properly,  just not able to get the hang of some things: whether work-related or leisure activities - from book-keeping, bar duties, cleaning to shuffling cards, playing pool...

A tendency to be chaotic, forgetful & disorganised, despite our best intentions. Difficulty in refocusing after interruptions – this can affect everything from work to sport to sex.

Difficulties with retaining jobs

Difficulty making decisions

Unable to relate jokes, anecdotes or descriptions that require a degree of sequencing.

Appearing not to listen when spoken to directly

Stress, depression and frustration with ourselves, often accompanied by a fear of embarrassment

Difficulty maintaining relationships & partnerships

Sleeping problems

  • Treatment: At present there is no pharmalogical treatment for Dyspraxia. Some people maintain that they're helped by taking supplements of fish-oil, of which an increasing number is on the market. Organisations such as DORE (see links page) have also claimed to be able to increase co-ordination abilities through programmes of specific physical exercise.

     

  • Dyspraxia often comes "packaged" with other NeuroDiverse conditions, most commonly Dyslexia. Here's some of the more common ones..
  •  

     

  • Attention Defecit Disorder & Attention Deficit Hyper-Activity Disorder (ADHD) are  fairly well documented in the media these days
  • Obsessive Compulsive Disorder (OCD)
  • Dyscalculia:  Someone with this condition cannot, for instance, analytically devise a budget plan, or perform any other maths orientated task that requires the left and right side brain intergration.
  • Dysgraphia: This is due to problems with organization. Construction of words is difficult.
  • Asperger's: Problems with social interaction
  • Dyslexia: Difficulties with reading and maths due to the reversal of letters and numbers.


  • Guestbook of ndscotland.co.uk
     
    05-12-2008 - 10:37
     
     
    Total messages: 25 - Messages viewed: 10
     
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    NameComments
    Heather
     carvingheather@yahoo.co.uk
    10-11-2008 - 10:31 - from 79-68-121-225.dynamic.dsl.as9105.com
    Really glad to have found this site. My son is 17 and had a mostly terrible school life and now college is proving difficult unfortunately. I am looking for support mostly for him, he even cried this morning at having to go to college but with just about no 'friends' really. He is also dyslexic which is a double wammy. School eventually dealt with his dyslexia but never really acknowledged his problems due to dyspraxia. At college he has been called lazy, he is not and I have been called a 'mollycoddling' mother. Sorry I don't have a positive story to tell as yet. It is great to read the stories on this sight though. Anyone in similar situation do email me if you wish. Many thanks, Heather in Edinburgh.
    Ros McLeish
     mcleirosl@aol.com
    17-10-2008 - 00:51 - from cache-los-ac03.proxy.aol.com
    My son was diagnosed with dyspraxia at 6 yrs.old. School was not a great experience for him because of bullying and lack of communication amongst teaching staff. Having said all that, he is very resilient. He has just gained an honours degree and passed his driving test first time. He still lives with me at age 23 and is very hard on himself but he is a remarkable young man and I am immensely proud of him!
    Cherryl
     cherryl@woldsedge.org.uk
    15-10-2008 - 15:37 - from 195.92.163.130
    My 18 year old son was diagnosed at 8 and has battled and
    struggled socially throughout his school life. Last week he started university studying for a physics degree!
    Elizabeth
     et1066@hotmail.co.uk
     http://http://http://www.hi2u.org
    30-09-2008 - 18:04 - from cpc2-grnk1-0-0-cust323.renf.cable.ntl.com
    Hi, im glad i was told about this web site, my son has Dyspraxia,Dyslexia and speech impediment, i would love to talk to other parents,who knows what my son and i are going through
    Steve
     keating483@btinternet.com
    15-09-2008 - 13:53 - from host81-154-193-123.range81-154.btcentralplus.com
    My 32 year old son has DCD / Dyspraxia & I found the information written by a father in a similar situation to me very interesting. My son is easily able to tick 15 of the 17 difficulties listed. My wife and I have been fighting the authorities since he was diagnosed at 3 years of age. Regrettably, the battle continues
    karleen
     karleen83smile@yahoo.co.uk
    11-06-2008 - 11:40 - from net26-101.tvu.ac.uk
    good site i just found out that i am dispraxia which has helped me alot with understanding some of the odd stuff i do on a regular basis for example spilling drinks burning myself with the iron ha ha butu seriously it has affected my learning and i often struggle at uni so its good knowing that i have to deal with it and find ways to cope with my learning.
    Samantha
     mistydawnmanning@yahoo.com
    02-04-2008 - 03:19 - from adsl-76-252-41-126.dsl.ipltin.sbcglobal.net
    I was born with dyspraxia and my parents told me I had it, so I was one of the ones fortunate enough to know. I have learned how to get around my disorder, not entirely, but enough that I am now successfully working at, believe it or not, a factory. It is a very fast, high-paced environment where I work a lot with my hands. In my opinion, from my personal experience, dyspraxia is not exactly as it is defined. It is more like your brain thinks too fast for you to keep up, if this makes any sense to you. I have found that what works best is to stop for a moment, and kind of ask yoursel, "What did you say?". Mentally hit rewind, and replay what you were thinking, slower. Listen and concentrate. The more you practice, the easier it will get. Also, pay attention to the people around you. Study how their hands move. Watch the order in which they operate. Challenge yourself to do the task at hand better than they do. Also, fool yourself a little if it helps. Put your disability out of your mind and just pretend that the task is something you have always done, easily. Really, slowing down your mind and learning to hit rewind and listen to yourself helps most. Just some pointers, hope it helps.
    Barbara
     lkbrbr@aol.com
    16-01-2008 - 19:46 - from host86-162-211-106.range86-162.btcentralplus.com
    I have an 18 year old daughter with dyspraxia who is going through a bad time at the moment. She managed to secure a job in early December as a stable hand. However has just been given a writen warning as her employer states she is not giving 100% to her new job. I have spoken to the employer who told me that she can not justify paying my daughter £6 an hour and has called her lazy.
    Please has anyone any advice on what jobs my daughter may be sucessfull in?
    Tonio
     llewka22@yahoo.co.uk
    28-12-2007 - 13:30 - from 89.240.214.169
    I was diagnosed 4 years ago at the age of 43. Its been a revelation. Mostly for the good. I would like to stress most strongly that theres such tremendous upsides to being dyspraxic. Yes its a pain sometimes but what one of us cant say that we have been able at times to problem solve in a way others cant? That we in the main are optimists because thats been my experience. I would say it doesnt define who I am but enhances the rest of me. Thanks for this site, its a goodie
    sonya
     sonya.weiss@btinternet.com
    13-10-2007 - 19:34 - from host86-144-255-164.range86-144.btcentralplus.com
    Hi

    I was diagnosed with dyspraxia and discalculus, 2 years ago. Rather late in life. It came as quite a shock, although as a relative pointed out to me recently "we always knew you had something. We just didn't know what it was".
    I have looked on many websites the last 2 years and just found this one. Found it helpful, particularly the bit on disability/discrimination. I am suffering a lot of bullying/discrimination from my workplace at present. They identified and got me diagnosed in the first place, but arent offering much in the way of adjustments and are now questioning whether my disability comes under the disability discrimination act. The best bit is that I work for a disability rights organisation!!!!. It would be interesting/useful if there was more information/case studies on discrimination experienced by people with Dyspraxia and or discalculus.
     
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